Updated: Jan 17, 2022
You ever feel like you’re getting the hang of something that you have no business being skilled in? By the end of June I was really good at:
packing a suitcase in minutes
sleeping on a full size fold out couch
existing on no sleep
knowing which vending machines has the sodas and candy I wanted
waking up 4,327 times a night
programming feeding pumps, replacing NG tubes, shutting off beeping feeding pumps, hearing incessantly beeping o2 sat monitors
when will this all be over?
We spent 7 more long days inpatient as we tried to come up with some way for Jude to be able to comfortably take in 1200ml a day without getting sick. We went through countless tests to ensure there wasn’t a structural issue hindering him from being able to take In such volume, and we worked tirelessly to keep control of his calcium and rehydrate from the losses we took during all of his vomiting.
continuous overnight feed
The only viable solution was to break Jude’s feeds down over 24 hours so that he never has to take in too much at any one time. He would have to do a 10 hour continuous overnight feeding.
Jude meet bridle