Financial Resources

Grants & Charities

Avery's Hope

Avery's Hope awards grants to those diagnosed with rare pediatric GI diseases.

Cerner Charitable Foundation

Cerner Charitable Foundation provides funding for children whose families cannot afford medical care, equipment, vehicle modifications, or displacement related to care.

Mica Hammond Fund

To give awards totaling approximately $2000 annually, periodically as needed, to help pay valid noninsured expenses related to and incurred by needs-based families that use blended diets for G-tubed special needs children.

 

Support Services

Courageous Parents Network

Learning and advocacy for parents and caregivers of children with serious illnesses.

Complex Child

Website and online magazine detailing what its like to have a medically complex child written by parents just like you and me.

Resource Binder

Jonah and the Whale Foundation offers a parent resource binder template to help you organize important medical information and documents.

 

Teens with Tubes

Resources to help with Tubie Teens

Adolescent Health Transition

A resource for teens and young adults with special health care needs, chronic illnesses, or physical or developmental disabilities.

A girl with Baggage

A blog where a tubie young woman shares her ongoing trials with a chronic illness she's battled since birth through her late teens and into her early 20's.

Band-aids & Blackboards

a project that deals with diversity, or difference. Not the sort of diversity that you usually hear about, though, like racial diversity, ethnic diversity, religious diversity, and so forth. Instead, it's about differences involving health and illness, medical conditions and physical differences. It's a diversity that's important to consider, because lots of kids don't know much about it, and their ignorance produces stigma. And stigma is a rotten thing to have to deal with, any way you look at it. The pages are an attempt to show you what it's like to grow up with medical problems. Most of the information comes from the kids themselves, and I hope that it will give you some serious food for thought!

 

Fun for Tubies

The painted turtle

Offered various camps for children with serious medical conditions

Roundup River Ranch

Offers various camps to children between the ages of 5 and 17 with serious medical conditions in the 11 state regions of Colorado, Wyoming, Montana, New Mexico, Kansas, Nebraska, North and South Dakota, Oklahoma, Utah, and Texas.

Camp Boggy Creek

Camp Boggy Creek is specifically designed for children with chronic or life threatening illnesses and allows them to safely enjoy the activities of a “traditional” camp. Between early morning swims and evening campfires, children whose lives have been a series of medical procedures and hospital stays are transformed into just “kids.” They have a chance to be with others coping with the same illness or condition and realize that they are not alone.

Flying Horse Farms

The mission of Flying Horse Farms is to enrich the lives of children with serious illnesses and their families by providing magical, transforming fun through medically-safe, cost-free experiences.